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Resources for Nebraska CF Families

Created by the NE Regional CF Center Family Advisory Board with guidance from the Nebraska CF Care Center pediatric team members

Editable Respiratory Treatment Order

Editable Respiratory Treatment Order

Use this editable document to stay organized and help those in your circle run treatments for your child with cystic fibrosis.

Resource Library

Resource Library

Collection of resources to support cystic fibrosis families financially.

Kindergarten Transition

Kindergarten Transition

Advice and encouragement based on our lived experiences from this exciting and scary time!

Hospital Guide

Hospital Guide

Use this guide to help you prepare for a hospital admission. We have included tips and resources that have been helpful for other families when their child with CF was admitted.

504 Plan and IEP Examples

504 Plan and IEP Examples

Examples of plans used by real local CF families!

Medical Information Form

Medical Information Form

Condensed Medical Information Template for encouraging independence and self-advocacy when transitioning into adulthood and from pediatric to adult CF clinic.

Medication Quick Reference Guide

Medication Quick Reference Guide

Tips for administering common CF medications.

Self Care for Caregivers in the Hospital

Self Care for Caregivers in the Hospital

Suggestions and resources for making sure you aren't trying to pour from an empty cup.

New Patient Welcome Basket

New Patient Welcome Basket

Gifts in the spirit of comfort and kinship amidst the barrage of new information about a child's recent CF diagnosis.

This Nebraska CF Families website and the NE CF Family Advisory Board are operated by local CF families with the guidance of the Omaha Children’s Hospital Cystic Fibrosis Center.  No advice or recommendations on this page should be taken above that of your CF Care Team.  Always check with your provider regarding any medical information and recommendations.  The advice and suggestions on this website are shared with the goal of helping local CF families feel connected and informed.

©2023 by NE Regional CF Center Family Advisory Board. Proudly created with Wix.com

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